Tori Ethier

We will finally be discharged next week! After a long hospital stay of over 3 1/2 months, we still don’t have a diagnosis. Krew was … Read more

Hi guys, so two days ago, Krew started on the immunomodulators that were given from a specialist in California. He was either going to be … Read more

You’re going to be okay my love bug ♥️

Been a little while everyone I’m so sorry. Taking it all in! Over the last week we’ve seen some changes in little krew krew. We … Read more

Good morning! We had a little set back on starting new treatments. He had to get a few vaccines before the new medicines. Have to … Read more

Goodmorning. We got some good news 🙂 CHLA contacted us back & we were able to have one of the neuro immunologist over there tell … Read more

Still haven’t found a diagnosis to pin point what exactly is happening with my Krew Krew 🙁 The doctors say it’s a perplexed situation they … Read more

Good morning! Krew finished his 6th procedure of plasma pherisis. He did have the times cut in half because his blood pressure kept dropping, but … Read more

Good morning! Krew has done 2 plasma procedures so far. They have gone as planned with no complications. He has another one this morning coming … Read more

Krew just went into surgery. Today is his first day for plasma pherisis. This is the next procedure we can do for him. The steroids, … Read more