Set Back on Treatments

Good morning! We had a little set back on starting new treatments. He had to get a few vaccines before the new medicines. Have to wait until 2/23 to give them & to make sure he doesn’t have any reactions to the vaccines. Today he’s off the seizure meds. Krew is only on one brain medicine still to help the neuro pain. He’s up to speed on his feeding now so he’s gained the right amount of weight to be considered healthy again. Body tone is still stiff but getting a little more loose. He can’t sit up by himself or walk at all, but with the help of PT daily we’re hoping it will be sooner than later, praying. So happy he’s making little progress now. Love you little bubba!!! So proud of you & thank you for all the support through this we’re hanging in there xoxo

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