Updates on Krew

For everyone keeping up on us!!

We will finally be discharged next week! After a long hospital stay of over 3 1/2 months, we still don’t have a diagnosis. Krew was … Read more


Hi guys, so two days ago, Krew started on the immunomodulators that were given from a specialist in California. He was either going to be … Read more

MRI Today

Been a little while everyone I’m so sorry. Taking it all in! Over the last week we’ve seen some changes in little krew krew. We … Read more

Love Bug

You’re going to be okay my love bug ♥️

Set Back on Treatments

Good morning! We had a little set back on starting new treatments. He had to get a few vaccines before the new medicines. Have to … Read more

Good News!

Goodmorning. We got some good news 🙂 CHLA contacted us back & we were able to have one of the neuro immunologist over there tell … Read more

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