We love you Krew!!! ♥️ So so much bubba!!!
Hey everyone! Sorry, I haven’t updated in a little bit. We had a little setback again. We were supposed to go home as you know … Read more
Hey everyone! Sorry, I haven’t updated in a little bit. We had a little setback again. We were supposed to go home as you know … Read more
We will finally be discharged next week! After a long hospital stay of over 3 1/2 months, we still don’t have a diagnosis. Krew was … Read more
Good morning! We had a little set back on starting new treatments. He had to get a few vaccines before the new medicines. Have to … Read more
Goodmorning. We got some good news 🙂 CHLA contacted us back & we were able to have one of the neuro immunologist over there tell … Read more
Still haven’t found a diagnosis to pin point what exactly is happening with my Krew Krew 🙁 The doctors say it’s a perplexed situation they … Read more
Good morning! Krew finished his 6th procedure of plasma pherisis. He did have the times cut in half because his blood pressure kept dropping, but … Read more
Good morning! Krew has done 2 plasma procedures so far. They have gone as planned with no complications. He has another one this morning coming … Read more